Nika Alexanyan is from Armavir in Russia. Nika was born on September 24, 2018, and has SMA type 1. Since three months of age, the child was on supportive therapy as a part of an open study by Novartis.

Unfortunately, Novartis is no longer developing this particular supportive therapy drug. However, Novartis promised to administer Zolgensma to all children of this open study instead.

Nika will receive her life-saving Zolgensma shot through Novartis Pharmaceuticals approximately mid-November 2021.

All the money that Nika’s family raised will be used to pay for Nika’s rehabilitation, and to support other children with SMA.

Meet little Sofia after Zolgensma and see her new accomplishments!
We cannot find enough words to share our gratitude to all artists and donors who helped to spread the message about Sofia on Instagram and helped us on Facebook.

Thank you! The miracle for Sofia became possible because of all of you:)

Songs for Tasya campaign

We want to thank all musicians who performed music for the “Songs for Tasya” campaign. Thank you to everyone who donated on Facebook and on Tasya’s Instagram. Together we saved Tasya’s life. On May 13, 2021, Tasya received Zolgensma.
To learn more about Tasya please follow her Instagram account.