We provide life-saving medical care to children with genetic diseases based in Eastern Europe, specifically Ukraine. We do this by addressing the full continuum of care, from genetic testing to emergency interventions.
We help to raise the much-needed funds for children who have a finite time when they are eligible for life-changing healthcare. We also support our children and their caregivers prior to and after gene therapy treatments.
During the war, children with rare diseases were hit the most. Some are cut off from qualified medical help with no...
Our Enteral Nutrition Initiative started as a life-saving project aimed at supporting children in Ukraine with rare...
Detecting a genetic disease at an early stage can help stop its further progression or prevent its irreversible effects...
BFS is taking part in the major charity event of the year, and we hope you are ready to share the holiday season with...
Varyusha Mayer, 5, is the only girl in Ukraine with a severe genetic defect of SLC6A1, and Ravicti is the only medicine...
Our not-for-profit organization was named after Sofia Darbinyan. She is a child with Spinal Muscular Atrophy whose life was saved through generous donations. As a result, Sofia was one of the more fortunate children who was able to access Zolgensma gene therapy treatment. In an effort to raise the funds for her treatment, over fifteen hundred artists from around the world drew or painted birds in Sofia’s honor.
Each and every art piece our artist partners made created a new awareness of her specific cause. Due to their efforts and talents Sofia’s life was saved and forever changed. Please help us send additional birds of hope to those who really need them today. Please partner with us to continue changing the lives of children with rare diseases in Ukraine and throughout the world.
