Unbiased Inheritable Disease Program
Varyusha Mayer, 5, is the only girl in Ukraine with a severe genetic defect of SLC6A1, and Ravicti is the only medicine...
Active Campaigns
Giving Tuesday 2025
BFS is taking part in the major charity event of the year, and we hope you are ready to share the holiday season with...
Genetic Testing for Undiagnosed Patients Program
Detecting a genetic disease at an early stage can help stop its further progression or prevent its irreversible effects...
Enteral Nutrition Initiative
Our Enteral Nutrition Initiative started as a life-saving project aimed at supporting children in Ukraine with rare...
Medical Support for Most Vulnerable Children with Rare Diseases from Ukraine
During the war, children with rare diseases were hit the most. Some are cut off from qualified medical help with no...
Thank you to all of you who helped us send the most needed items and medicine to the children with rare diseases from Ukraine
Children We Helped
Erik Morozov from Odesa
SMA type 1, received diapers and formula
Maria-Teresa Mikhailovska from Lviv
SMA type 1, received Tomato Sitter size 1
Nazar Kurchak from Chernivtsi Oblast
SMA type 2, received Tomato Sitter size 1, Verticalizer
Dima Zhadan from Mykolaiv
SMA type 2, Received Tomato Sitter with Wooden Frame and Wheels size 3, special nutrition
Matvii Daniliuk from Dnipro
SMA type 1, received vibroplatform Gymtek
Joint Humanitarian Aid with Palm of Hope
Marianna Bogdanova from Kramatorsk
SMA type 2, in process of receiving Ranger Spacepro Carbon Lightweight Folding New Era Power Chair and Air Cough Assist T70
Joint Humanitarian Aid with Palm of Hope
Maria Chigrichenko from Poltava oblast
Cystic fibrosis, in the process of receiving medications worth $5,380
Polina Kozenkova from Pisochyn
SMA type 2, received a personal grant to purchase an electric wheelchair
Vasylyna Kvasha
Cystic fibrosis, received Ingalator, sterilizer, special nutricion
Rostyslav Yantkov
SMA type II, received a grant to buy wheelchair and “Motomed Viva” training device
Anastasia Brezhnieva
Cystic fibrosis, received Inhalator, nebulizer, orthopaedic shoes, and a grant to purchase medicine for 3 months
Natalia Zaitseva
SMA Type III, received a grant to purchase 14 packs of vitamin D
Mykhailo Utkin
Cystic fibrosis, received mini-trampoline, special nutrition, 2 filters for Ingalator
Katya Veschova from Odesa region
Adams-Oliver syndrome, a grant to purchase a stroller
Vladyslav Kaminnyi
SMA type II, received Vibration Platform Hypervibe G10v2 and Upseat sitter
Katya Zasukha from Dnipro, Ukraine
SMA type 1, received Tomato Sitter 1 and nutrition drinks
Nykin Syvun
SMA type 3, received an electric scooter
Danislav Bersenev
Cystic fibrosis, received Pari Eflow Inhalator and nutrition drinks
Varvara Mayer
Epileptic encephalopathy with SLC6A1 mutation, received rehabilitation in center Atlantis in Belgium
Sviatoslav Onoprienko
Congenital adrenal hyperplasia, received a grant to pay for blood tests and transportation
Demyan Kochkur
Cystic fibrosis, received Inhalator Pari Boy