The second child in a healthy family, Tymofii was developing normally in the first days, however, he sadly faced the early onset of SMA already in the third week after birth. The genetic testing soon confirmed the Type 1 diagnosis and tore the parents’ hearts forever apart.
In these 2 years, the family had to learn to build their life into Tymofii’s routines and devices. Tim is taking Risdiplam as a part of Genetec’s Early Access International Program.
The members of the BFS Board of Directors Nataliya Miller and Matt Lambert have been interviewed by KUTV CBS 2 channel
BFS congratulates Dima, his family and the team of volunteers! We are endlessly happy you’ve been given this amazing chance before the age of 2! Hope, the rehabilitation is easy, and the effects of the therapy are going to be stunning. Wishing Dima all the health on the planet!
Sofiia Mykytiuk is 9 months old, she has SMA Type 1. The family decided to immigrate to the US 5 months ago as “Uniting for Ukraine” program participants. After long examinations and tests, Sofiia qualified for Zolgensma therapy and received treatment at Los Angeles Children’s Hospital right after Christmas 2022.
BFS expresses enormous gratitude to all medical professionals and volunteers who made this life-saving journey for Sofiia a reality!
BFS has raised $9,950 for Oleksand’s annual hormonal therapy with Genotropin.
Sasha needs to take the synthetic form of the hormone of growth on a daily basis. This way his body and internal organs will form properly.
Thank you for supplying Sasha with this treatment for one year!
Emma from Bucha, Ukraine is 4 months old and she suffers from SMA Type 2. Emma has received treatment with gene therapy, Zolgensma, at the Los Angeles Children’s Hospital (CHLA) as a part of a humanitarian effort to treat Ukrainian children of war.
Miia from Vinnytsia, Ukraine has SMA type 2. Miia received Zolgensma, gene therapy at Children’s Hospital of Los Angeles (CHLA) right before her second birthday.
What a lucky chance. Katya Zasukha participated in Novartis’s lottery and won a dose of life-saving Zolgensma medication though Novartis! The words cannot express how happy we are to announce this news.
On the last day of August 2022 Solomiia Chorniuk, a one-year-old baby from Ukraine received Zolgensma in the USA. Solomiia participated in the USA Resettlement program for approved “Uniting for Ukraine” parolees. We congratulate Solomiia, her parents, volunteers, and friends.
The BfS team wishes Solomiia happy days and easy rehabilitation and hopes gene therapy will help Solomiia achieve new skills!
Anri’s collection was the first Zolgensma campaign for our foundation in a status of a 501c3 organization. As hard as it was, we had been trying to help Anri since November 2021 and we are happy to announce that Anri’s fundraiser is finally closed! Anri will receive Zolgensma at MedCare hospital in Dubai (UAE)
