Varyusha Mayer, 5, is the only girl in Ukraine with a severe genetic defect of SLC6A1, and Ravicti is the only medicine in the entire world able to help her fight this rare disease. The campaign is collecting €38,526 to cover the annual course of medication and...
Detecting a genetic disease at an early stage can help stop its further progression or prevent its irreversible effects by finding timely and appropriate therapy. Please join our mission of improving the quality of life for kids with rare diseases in Eastern Europe....
Our Enteral Nutrition Initiative started as a life-saving project aimed at supporting children in Ukraine with rare diseases who depend on specialized nutrition to survive. These children cannot eat regular food due to severe medical conditions, making enteral...
During the war, children with rare diseases were hit the most. Some are cut off from qualified medical help with no access to medicine, medical equipment, and rehabilitation. Help us send the birds of hope to the most vulnerable families from Ukraine.
Birds for Sofia Foundation Hosts International Pediatric Rehabilitation Workshop in Würzburg